Monday, March 4, 2013

Spaghetti Head

I'm sitting here at Arkansas Children's Hospital with Korbin while he tries to sleep with EEG wires pasted to his noodle head. He did surprisingly well allowing the tech to hook him up. Aidan, our 16 year old, was diagnosed with epilepsy at age 3. He had absence seizures until he was about 12. Once he went through puberty they seemed to be gone. With the guidance of his neurologist we weaned him off medication and he's been seizure free ever since.

Honestly we've suspected seizure activity since Korbin was a toddler, but after 2 failed attempts at getting him to cooperate with attaching the spaghetti-like wires to him, the doctors said we wouldn't bother with it unless it became severe or more worrisome. About 2 years ago he started having episodes that set off m my mommy alarms. His eyes kept looking up at the ceiling even though he didn't want them to. Sometimes his head would pull back with it. He was fully conscience and aware. In fact he was fully annoyed by the whole thing. The episodes are back again.

His primary care doc agreed with my assessment so here were are. I'm hoping this isn't really seizure activity, but I know better. Even if the EEG is clear is doesn't negate the episodes he has been having. I'm so grateful every time we visit Arkansas Children's Hospital. It doesn't matter if it's to his primary care clinic or for emergency care, just knowing they are here for us makes getting spaghetti head not so bad... for both of us.

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